A Very Warm Welcome To The NET Patient Foundation Website
This is the new website for the NET Patient Foundation (incorporating Living with Carcinoid). We hope that you like it, and find it easy to use, and full of all the information you’re looking for. We’d welcome your feedback.
The NET Patient Foundation continues to be the only charity in the UK & Ireland that offers information and advice to those affected by neuroendocrine tumours. You’ll be able to find information booklets, forums and details of support group meetings in our Patient Journey area. Please email or call us if you’d like some advice or you’d just like to chat. Your call will be answered by Cathy, an experienced NET specialist nurse. If Cathy is busy in clinic, and unable to take your call, just leave a message and she will get back to you.
This year we’re hoping to do even more for NET patients. Our Suspect-a-NET campaign will aim to raise awareness of the condition, and may lead to improved rates of diagnosis. We’re also aiming to raise £1 million over the next twelve months, and we’ll set up a Scientific Panel who will ensure that this money is used for the most promising research projects in NET centres around the UK and Ireland.
This is your site, whether you are a newly diagnosed patient, a family member or friend, or a regular member of our forums.
Thank you for your patience whilst the site has been developed and thank you to our sponsors, without whom this would not be possible.
Huge thanks also to all of our fundraisers. In this year alone there have been some tremendous initiatives, and we are so very grateful.
There will inevitably be a few problems to iron out on the site and there are a couple of key sections that are not complete, namely the handbook and the fundraising pack. However these will be on site by the end of July 2009.
Cathy Bouvier and the NET Patient Foundation Team
