NET Patient Foundation
A Very Warm Welcome To The NET Patient Foundation Website
FREEPHONE - 0800 434 6476 Please DO phone if you want just a chat or some advice.
*For all the latest news please see the NEWS section at the top of the page.
*There are a number of ways of contacting us - please go to CONTACT section on the left hand side of the page.
I N V I T A T I O N
NET Patient Support Group Meeting
Support Meeting Hertfordshire - Sunday 30th November, 1.00pm – 4.00pm
View flyer>>
***AN IMPORTANT MESSAGE FOR UK Carcinoid-Neuroendocrine Patients.
This International NET conference in Canada NEEDS you. We need representation from the UK patient community at our conference in Canada.
The International Carcinoid NET Conference & Symposium for Patients and Medical Professionals will be held in Toronto, Canada NEXT MONTH. 16-19 October, 2008.
The Carcinoid NeuroEndocrine Tumour Society Canada specially welcomes Patients and Medical Professionals from the UK to register for this important conference.
Following in the tradition of the US annual National Carcinoid and Neuroendocrine Tumor Conferences for Patients and Medical Professionals, Toronto is the venue for the first INTERNATIONAL Carcinoid and Neuroendocrine Tumour conference for Patients and Medical Professionals! A very worthy faculty will gather from all over the world and will include eminent physicians from Sweden, Germany, France, the USA , Canada , India and ALSO from England and Ireland. We even have a physician from Scotland in the shape of conference co-chair Dr Robert H Reid. Dr Reid is Canada based but is professionally connected with UK NET physicians. All conference physicians and researchers are world NET leaders and bring with them a wealth of information.
It is so important for patients to learn about options available everywhere and to mingle with other patients.
We need our International patient community to become an important component of this conference. Toronto welcomes you with open arms.
Air fares can be sometimes surprisingly inexpensive from the UK to Toronto.
Patients, please register at www.cnetsconference.ca Medical professionals, please register at www.cnetsconference.ca
If you have questions I will give you a call from Canada to the UK. No question is too small. Just email me and I will email or call back. I have excellent rates here. The time difference is five hours. Please email maureenc@sympatico.ca or call 001-416-544-8467. I will call you back.
18.5 CME/AMA credit hours will be available to all medical professionals.
Please register at www.cnetsconference.ca
Dr Sarah Brewer the charity’s new patron introduces herself.
For all other news go to the news section. For fundraising news look down the left hand side and click on fundraising.
If you are thinking of doing some fundraising this year PLEASE THINK OF US. We have many projects that we would love to achieve this year and with the sad loss of 2 of our key members we need as much help as we can get. We will help with tools required e.g t-shirts, posters etc…………
The NET Patient Foundation incorporating Living with Carcinoid was formed at the start of 2006 and has Charity Status.
The collaboration with Living with Carcinoid meant the charity could spread it wings to include patients with all types of neuroendocrine tumour.
We have five main aims:
1- To support patients and their families through a support line which is manned by an experienced health care professional.
2- To raise awareness of neuroendocrine tumours through campaigns, attendance at relevant international NET conferences, roadshows around the country and fundraising events.
3- To improve the quality of life for patients and families through the moderated forum, help line and information.
4- To support research initiatives at the NET centres around the UK as the charity grows.
5- To provide accurate and up-to-date information in the form of booklets, a quarterley newsletter, the website and patient support group meetings.
The charity relies solely on donations and fund raising initiatives so if there is anything you can do to help then please get in touch.
Please feel free to make any suggestion or comments which you can either send by post or email to catherinebouvier@btinternet.com
Other contact details are on the site.
The Foundation has mainly been run by two fabulous NET patients Andrew Geach and Catherine Kalamis.
Andrew and Cathy both sadly died in 2007 and that has given us even more determination to raise the profile of this disease.
We truly hope the service we offer will help you in some way
The NET Patient Foundation Team
