Macmillan Cancer Support has a fantastic website, which offers lots of support and practical advice. It’s a particularly useful place to find information on financial support, including a fantastic section on “Getting travel insurance when you’ve been affected by cancer.”

Offers advice and information to individuals with rare and less common cancers or to their families and friends, providing a ‘bespoke’ service by phone/email/post.
When requested, tries to facilitate networking between patients and/or families affected by the same or similar rarer cancers, putting people in touch with others for support and sharing of experiences.
Raises awareness about rare and less common cancers and the needs of patients.
Produces educational resources for patients, their families and health professionals.
Has involvement in securing the best possible services for people living with rarer cancers.

AMEND is a UK registered charity committed to supporting all those affected by multiple endocrine neoplasia (MEN) and its associated endocrine growths. AMEND is run voluntarily by patients for patients with the help of an expert medical advisory team. Visit AMEND at www.amend.org.uk.