The Patient Journey
Are you living with a neuroendocrine tumour? Perhaps you or someone you know has just been diagnosed. We understand that discovering you have cancer can be a frightening and bewildering experience, and we’re here to help by offering you information and support as you come to terms with your diagnosis. We’re also here to support you on your journey forward into the treatment and management of your condition, and to help you to maintain the best possible quality of life.
We can offer support and information in many ways:
- We have booklets on different types of NET, a Patient Handbook, and other useful documents like symptom and diary cards. You can download these here, or we can mail them to you.
- Our helpline is staffed by a friendly and knowledgeable specialist nurse, Cathy, who will be happy to listen to your concerns and answer any questions you have. (Cathy may not be able to answer your call immediately, as she does part-time clinical work, but she will get back to you if you leave a message.)
- We have a team of specialist medical professionals whose knowledge we can draw on to help you with your specific needs.
- We organise Patient Support Groups around the country. These offer an opportunity to meet specialist medical professionals and other patients.
- Our online forum is a great place to share your experiences with other patients.
- See the menu at the side for links to other useful sources of information
