NET Patient Foundation Inc » Useful websites

PCT Drug Funding Advice

maia — Mon, 12 Apr 2010 11:50:21 +0000

The Kidney Cancer Support Network has a fantastic section on PCT Drug Funding including advice and downloadable templates.

Have a look at it here:

Google Alerts

maia — Thu, 09 Jul 2009 11:09:07 +0000

If you want to keep up to date with any new developments in the field of NETs, it may be worth your while signing up to Google Alerts. To save you time trawling the internet for information, Google Alerts will send to your email any items that appear on their search engine related to your field of interest. Much of what comes through may be irrelevant to you, but it’s definitely worth a look.

All you need to do is go to www.google.com/alerts and then type in keywords (e.g. “Neuroendocrine Tumour”) and your email address.

Information on Travel Insurance for NET Patients

maia — Fri, 26 Jun 2009 09:52:02 +0000

This information comes from the Macmillan website:

Preparation for getting travel insurance

Before contacting travel insurance companies you may find it helpful to prepare by having certain information ready.

This list includes many of the things an insurance company will want to know. Some of the questions may seem very personal, but your answers will give an insurer the information they need to help them decide what cover they are prepared to offer you, and what price they will charge.

A typical telephone medical screening process will take, on average 5-10 minutes. If you have, or have had, other conditions as well as cancer you may be asked similar questions about those.

You should be aware that if you do not disclose information that you could reasonably be expected to know when you buy a policy, any subsequent claim that you make could be refused.

Personal information

The name and ages of all those to be insured by the policy – some insurance companies will insist that family or friends travelling with you are insured on the same policy
Your address and contact details

About your trip

The country you are visiting and the type of journey you plan to take. If you have a choice about where you travel, you may consider visiting Europe rather than North America because travel insurance could be cheaper
How long you plan to stay abroad
How far in advance you are booking your trip. Some companies will charge you a higher premium if you will not be travelling in the near future, because they believe there could be a higher risk of you making a claim for cancellation
Any activities you will be undertaking that might be considered a higher risk, such as winter sports

Medical information

A company may ask if you have a pre-existing medical condition, such as cancer. If your answer is ‘yes’ you are likely to be asked more questions about this. Some companies call this their ‘medical screening process’. An insurance company may ask you the following:

How long ago were you diagnosed with cancer?
Where is/was your cancer?
Has your cancer spread? If yes, where?
Are you undergoing any treatment or taking any medication at the moment?
Have you had any surgery for cancer in the past?
Have you any planned treatment or surgery for cancer? If so, when?
How many times have you seen a doctor (GP or consultant) about your cancer? Some companies ask you about the last time you visited your doctor for any reason, not just about visits related to your cancer. For example, if you are going for check ups to make sure you stay well, some companies may consider you a higher risk to insure
What symptoms or side-effects do you have now?
What stage are you at in your cancer journey? Some companies will ask you about your prognosis. This can be an upsetting question to answer but prognosis may be one of the criteria that a company uses to decide who to cover

To consider

If you have taken cancer-related exclusions on your policy you should think about how you will pay for any medical expense that is not covered.

Find out about medical treatment facilities at your destination
Think about what you will do if you lose any medication you take or if you have it stolen from your bags when you are abroad
Think about the type of transport you will be using to get to your destination. For example, a plane journey may not be suitable if you are having certain types of cancer treatment
If you are being sent abroad specifically for your treatment, insurance is only one of a number of important issues that you will need to consider. We strongly recommend that you discuss these with your medical team

European Health Insurance Card

The European Health Insurance Card (EHIC) has replaced the E111 form, which is no longer valid. Some insurers will insist that you carry the EHIC when travelling to Europe as their travel insurance policies may not be valid if you do not have the card.

The EHIC means that you are entitled to emergency treatment within the European Economic Area (EEA) for free or at a reduced cost. You will get the same care as the people who live in the country you are visiting, but you might not be covered for all the things you would expect to get free of charge from the NHS in the UK. For example, the EHIC will not cover the cost of ambulance services or of bringing you and your family back to the UK. What’s more, you may have to make a contribution to the cost of any other care you need. This is why the government strongly advises all UK travellers to buy separate travel insurance, as well as carrying the EHIC.

Apply for a European Health Insurance Card (EHIC) at Department of Health, Tel: 0845 606 2030 www.dh.gov.uk/travellers. You can also get an application form at your local post office.

Travel insurance companies and brokers

Please find below a list of insurance companies and brokers that you may like to try calling for a travel insurance quote, as well as some financial organisations that can help you in your search.

Please note that in providing information Macmillan Cancer Support cannot give you advice about travel insurance. Macmillan Cancer Support cannot guarantee that you will be able to obtain cover. Macmillan Cancer Support is not endorsing any travel insurance product.

InsureCancer
76 Crooksbury Road
Farnham
Surrey
GU10 1QD
Tel: 01252 780 190
Email: enquiries@InsureCancer.com
Website: www.insurecancer.com

Insure Pink

Equity Insurance Brokers Limited
Registered office: Library House
New Road
Brentwood
Essex
CM14 4gd
Tel: 08000 22 32 13
Email: enquiries@insurepink.co.uk
Website: www.insurepink.co.uk

The Insurance Surgery
Specialist Independent Broker
King Edward House
1 Jordangate
Macclesfield
Cheshire
SK10 1ES
Tel: 0800 083 2829 Fax: 0870 458 7956
Email: enquiry@the-insurance-surgery.co.uk
Website: http://www.the-insurance-surgery.co.uk/illness/cancer/insurance.php?ref=175

Marks and Spencer
Civic Drive
Ipswich
Suffolk
IP1 2AN
Freephone: 0800 731 2424
Website: www.marksandspencer.com

Free Spirit Travel Insurance
Stansted House
Rolands Castle
Hampshire PO9 6DX
Tel: 0845 230 5000
Website: www.free-spirit.com

Manor Insurance Services (Broker)
123/124 Queens Road
Hastings
East Sussex
TN34 1RP
Tel 0800 027 6171 or 01424 718790
Fax: 01424 718 761
Email: insure@manorinsurance.co.uk
Website: www.manorinsurance.co.uk

It’s So Easy Travel Insurance
27 Old Gloucester Street
London
WC1N 3XX
Tel: 0845 222 4205
Email: hello@itssoeasytravelinsurance.com
Website: www.itssoeasytravelinsurance.com

Holiday Services Limited
Kedleston Close
Huthwaite
Nottingham
NG17 2SE
Tel: 01623 407 321
Email: info@holidayservices.org.uk
Website: www.holidayservices.org.uk

Insure and Go Insurance Services Limited (Broker)
Insure & Go Insurance Services Ltd
Maitland House
Warrior Square
Southend-on-Sea
Essex SS1 2AA
Tel: 0870 901 3674
Email: information@insureandgo.com
Website: www.insureandgo.com

All Clear Travel Insurance (Broker)
6th Floor, Regent House
Hubert Road
Brentwood
Essex CM14 4JE
Tel: 0871 208 8500
Website: www.allcleartravel.co.uk
Email: info@bishopscourtas.co.uk

FOGG Travel Insurance Services Limited (Broker)
Crow Hill Drive
Mansfield
Nottinghamshire
NG19 7AE
Tel: 01623 631331
Fax: 01623 420450
Email: sales@foggtravelinsurance.com
Website: www.foggtravelinsurance.com

MARRS Insurance Broker (Broker)
Towergate Risk Solutions North London
288 Chase Road
Southgate
London
N14 6HF
Tel: 020 8920 1234
Fax: 020 8920 1230

Protected Future
Protected Future Limited
PO Box 432
Tonbridge
Kent
TN9 9DR
Tel: 0845 880 0158 (Mon-Fri 8am-8pm, Sat 9am-6pm, Sun 10am-4pm.)
Switchboard: 0845 880 0158
Email: info@protectedfuture.co.uk
Website: http://www.protectedfuture.co.uk

Travelbility
Peregrine House
Falconry Court
Bakers Lane
Epping
Essex
CM16 5DQ
Tel: 0845 338 1638
Fax: 01992 566901
Email: enquiries@travelbility.co.uk
Website: www.travelbility.co.uk

Medici Travel Insurance
Advertiser House
19 Bartlett Street
Croydon
CR2 6TB
Tel: 0845 880 0168
Email: customer.services@medicitravel.com
Website: www.medicitravel.com

Financial services that can help

The Financial Services Authority (FSA) is the UK’s financial watchdog, set up by the government to regulate financial services and protect your rights. The FSA also provides clear, impartial information about financial products and services to help make money matters clearer for you.

Financial Services Authority (FSA)
Consumer Helpline 0845 606 1234 (call rates may vary)
Minicom/Textphone 0845 734 0104
Open Monday to Friday 8am to 6pm
www.moneymadeclear.fsa.gov.uk

Finding a qualified insurance broker

Association of British Insurers
www.abi.org.uk

British Insurance Brokers Association (BIBA)
Consumer Helpline 0870 950 1790
www.biba.org.uk

Macmillan Better Deal Campaign Line
Freephone 0800 500 800
Open Monday to Friday 8am to 8pm
Open Saturday 9am to 12 noon
www.macmillan.org.uk/betterdeal

NB: Macmillan Cancer Support does not offer travel insurance or recommend insurance brokers or insurance companies.

Patient Journey – Useful websites

admin — Mon, 20 Feb 2006 14:22:37 +0000

Cancer BACKUP

3 Bath Place
Rivington Street
London EC2A 3JR
Tel: 0808 800 1234 Fax: 020 7696 9002
Website: www.cancerbackup.org.uk

Macmillan Cancer Relief

89 Albert Embankment
London SE1 7UQ
Helpline: 0808 808 2020
Tel: 020 7840 7840 Fax: 020 7840 7841
Website: www.macmillan.org.uk

NHS Direct

Tel: 0845 4647
Website: www.nhsdirect.nhs.uk

The Carcinoid Cancer Foundation (USA)

333 Mamaroneck Avenue # 492
White Plains
NY 10605 USA
Helpline:+ 1 888 722 3132 or + 1 914 683 1001
Fax: + 1 914 683 0183
Website: www.carcinoid.org

CNETS Canada

Why a Zebra?
In medical school, doctors are taught “when hearing hoofbeats, think horses, not zebras.” Carcinoid Cancer & Neuroendocrine Tumors has been thought of as ‘rare’ and therefore may be considered a zebra. With greater awareness and quicker diagnosis, it is being shown that Carcinoid Cancer & Neuroendocrine tumors is not as rare as was thought a few years ago! Carcinoid Cancer Awareness Network

http://www.cnetscanada.org/

Website: www.wayfoundation.org.uk

A.M.E.N.D

The AMEND website is committed to supporting patients with Multiple Endocrine Neoplasia and associated growths, their families and friends. The Association for Multiple Endocrine Neoplasia Disorders is a UK registered charity (no. 1099796). Click on any of the buttons to explore the site and learn more about M.E.N. and the work of the patient support group, AMEND.

The website has been created by MEN patients to help provide a comprehensive resource for patients and medics throughout the world.

The information in this website will go some way to making your choices easier to understand and therefore possibly easier to make during a lifetime of living with MEN.

Website: www.amend.org.uk

Nutrition in Cancer

There is a new website that has been launched to raise awareness of nutrition in cancer. It has been linked with the rarer cancer forum and is being sponsored by Nutricia. Log on and get your free DVD from the rarer cancers forum about cancer nutrition, and there is also a nutritional starter pack available on prescription that Nutricia have produced.

www.nutritionincancer.co.uk

Susan Anderson

A Carcinoid patient and awareness advocate who has maintained a personal website to provide information and support for the Carcinoid community since 1996.

www.carcinoidinfo.info

Royal Free Hospital Neuroendocrine Clinic

The aim of the Royal Free Hospital neuroendocrine tumour group is to provide optimal management for patients with neuroendocrine tumours, taking into account how the tumour affects each individual. We work within a multidisciplinary team and aim to enhance the prospects for treatment by a combination of clinical and laboratory research.

www.royalfree.nhs.uk

Introduction to Neuroendocrine Tumours (NETs)

Definition, classification and diagnosis by Dr Martyn Caplin, Royal Free Hospital. Click next abstract to read more NET related research.

www.endocrine-abstracts.org

Insulinoma UK

A website for patients with insulinomas.

http://www.insulinoma.co.uk

North American Net Tumour Advisor

Video clips & frequently asked questions, this site provides the basic information on NETs.
It covers the basics you need to understand these rare, slow-growing tumors.

www.netumoradvisor.com

Carpa

A Swedish based organisation founded in 1991 by patients and health professionals at the University Hospital Uppsalap. The Website includes resources in both English and Swedish

www.carpapatient.se

Northern Cancer Network Freeman Hospital
Newcastle upon Tyne

Answers questions for newly diagnosed patients

www.cancernorth.nhs.uk

National Cancer Institute

An in depth medical site

www.cancerweb.ncl.ac.uk

North American Alliance of Patients with Neuroendocrine Tumors

NAAPNET is the brainchild of Dr. Eugene Woltering of Louisiana State University in New Orleans.

It was formed at his request in September of 2004. Its primary purpose is to support the support groups, to facilitate educational events (including our annual conference, typically held in September of each year in the US), and to offer networking and educational opportunities.

www.NAAPNET.org

David John Wade – Australian Support Group

www.carcinoidwade.com

Patient Journey – useful websites info

admin — Mon, 20 Feb 2006 14:10:23 +0000