Patient Journey – useful websites info
Susan Anderson
A Carcinoid patient and awareness advocate who has maintained a personal website to provide information and support for the Carcinoid community since 1996.
A.M.E.N.D
The AMEND website is committed to supporting patients with Multiple Endocrine Neoplasia and associated growths, their families and friends. The Association for Multiple Endocrine Neoplasia Disorders is a UK registered charity (no. 1099796). Click on any of the buttons to explore the site and learn more about M.E.N. and the work of the patient support group, AMEND.
The website has been created by MEN patients to help provide a comprehensive resource for patients and medics throughout the world.
The information in this website will go some way to making your choices easier to understand and therefore possibly easier to make during a lifetime of living with MEN.
Royal Free Hospital Endocrine Clinic
The aim of the Royal Free Hospital neuroendocrine tumour group is to provide optimal management for patients with neuroendocrine tumours, taking into account how the tumour affects each individual. We work within a multidisciplinary team and aim to enhance the prospects for treatment by a combination of clinical and laboratory research.
Introduction to Neuroendocrine Tumours (NETs)
Definition, classification and diagnosis by Dr Martyn Caplin, Royal Free Hospital. Click next abstract to read more NET related research.
North American Net Tumour Advisor
Video clips & frequently asked questions, this site provides the basic information on NETs.
It covers the basics you need to understand these rare, slow-growing tumors.
www.netumoradvisor.com
Carpa
A Swedish based organisation founded in 1991 by patients and health professionals at the University Hospital Uppsalap. The Website includes resources in both English and Swedish
Northern Cancer Network Freeman Hospital
Newcastle upon Tyne
Answers questions for newly diagnosed patients
National Cancer Institute
An in depth medial site
North American Alliance of Patients with Neuroendocrine Tumors
NAAPNET is the brainchild of Dr. Eugene Woltering of Louisiana State University in New Orleans.
It was formed at his request in September of 2004. Its primary purpose is to support the support groups, to facilitate educational events (including our annual conference, typically held in September of each year in the US), and to offer networking and educational opportunities.
David John Wade – Australian Support Group
